Rett Syndrome Parent Tips

My daughter, Claire, is suspected to have a variant form of Rett Syndrome. The tips listed in this section have worked for us and for Claire, and may not be appropriate for your child. You know your child best, so don't try any of these ideas unless you're comfortable with them. It's always best to consult with your child's doctors and therapists if you have any questions.

One note of explanation: Claire is able to walk and run. Many of the challenges we face are related to the fact that she is ambulatory, so many of the ideas listed below reflect this. I welcome lists of ideas from other parents and professionals, especially from those whose children have different needs, and will be glad to add them to this Web site if you submit a list to me. Contact Us

Acknowledgements: Over the years, I have picked up many tips from Rett Syndrome newsletters, conferences, therapists, doctors and other parents. Some of these tips we figured out of our own, but many were from others. Our deepest thanks to everyone who has helped us.

Click any of the Tips links above to start reading tips, or click here to start.

See also:

• Angelman Syndrome - A To Z is a goldmine of parent tips. Although written for parents of children with Angelman Syndrome, most of the information is also extremely valuable for parents of children with Rett Syndrome.